Horses – Why I Do Too Much

Hey there! One thing you should know about me is that horses are my life! They are my passion, they are everything to me and often they are my reason for living. About two weeks ago I was told that I have inflammatory arthritis. I had a feeling that something was wrong when I could […]

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I am NOT getting out of Bed

I am NOT Getting Out of Bed Today

  The alarm rings and I wake to another school day. I lay there convincing my eyes to open and my body to move and I wonder, “What will today be like?” I pray my young daughter will feel better, that her headache will not be bad and that she slept. Maybe even just that […]

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Crud – It’s Not Just The Infections Anymore

After awhile you become immune to new bad news. You learn to expect the unexpected and to go with the flow. The Immune Deficiency websites warn that sometimes a whacky immune system turns on its own body. Yep, the very system inherently designed to protect you, causes new problems. Kids with PIDD can sometimes grow […]

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Diagnosis

Why is My Child Sick All Time?

Inherent in the heart of a parent is the desire to make our children feel better. But what if you can’t? What if your child spends more time at the doctor than they do at school? What if they have chicken pox three times and pneumonia more than once a year? When antibiotics become the […]

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If I Could Have One Wish – It Would Be Not Normal

Last night I had a dream that I found a bottle in the sand and the Genie gave me one wish. I wanted to wish for an end to Primary Immunodeficiency, but she would not let me. Anyway, I woke up before I got my wish, but I know what it would be. A combined […]

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Too Many “Ologists”

One of the biggest problems with immunodeficiency has been that it is not a single problem, at least not for us. If we only had specific antibody disease we could take our infusions and move on. But about 23% of people with PI, also have autoimmune complications. It began with the precursor to Type 1 […]

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Torn – What To Do When She is Sick

    Torn – as though equal and opposite forces were conspiring to slowly rip me apart.  Every working parent I know feels this way. You have a job and a sick child and a problem. When you have a child with Primary Immunodeficiency this is a frequent occurrence. How many days can you miss from […]

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Living Life on The Roller Coaster

A few days ago Courtney posted the following on her Facebook Page, “Some hours are good some are just plain awful!!!! Will all the hours ever be okay? I’m not so sure anymore. I think I have given up hope.” It broke my heart but lately that has sure seems like the pattern. Living with […]

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Courtney Says, “Hi” and Introduces Herself

Hey! My name is Courtney, and about 7 years ago my life was turned upside down. I was diagnosed with Primary Immunodeficiency. I was always sick as a child, and no doctor could figure out why this was. One day my Pediatrician saw the symptoms and said that I needed to be tested. To be […]

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Pills, Pills and More Pills

Pills, Pills and More Pills

For us Primary Immunodeficiency (PIDD) has not been a single diagnosis in an otherwise normal life. We seem to have lots of variables and lots of doctors. Each new complaint results in what Courtney calls “another oligist” She has a cardiologist, rheumatologist, neurologist, endocrinologist and the list goes on. Each new doctor seems to result […]

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Face Mask in a Crowd

Sick Friend -Weekend Trip

Face Mask in a Crowd? A couple of weeks ago my daughter went out of town with one of her friends. About mid-day Saturday she called to ask me what to buy at the drugstore for her friend who had a sore throat, cough and fever. My response, “ Don’t go to the drugstore, get […]

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