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Too Many “Ologists”

One of the biggest problems with immunodeficiency has been that it is not a single problem, at least not for us. If we only had specific antibody disease we could take our infusions and move on. But about 23% of people with PI, also have autoimmune complications. It began with the precursor to Type 1 […]

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Torn – What To Do When She is Sick

    Torn – as though equal and opposite forces were conspiring to slowly rip me apart.  Every working parent I know feels this way. You have a job and a sick child and a problem. When you have a child with Primary Immunodeficiency this is a frequent occurrence. How many days can you miss from […]

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I am NOT getting out of Bed

I am NOT Getting Out of Bed Today

  The alarm rings and I wake to another school day. I lay there convincing my eyes to open and my body to move and I wonder, “What will today be like?” I pray my young daughter will feel better, that her headache will not be bad and that she slept. Maybe even just that […]

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Crud – It’s Not Just The Infections Anymore

After awhile you become immune to new bad news. You learn to expect the unexpected and to go with the flow. The Immune Deficiency websites warn that sometimes a whacky immune system turns on its own body. Yep, the very system inherently designed to protect you, causes new problems. Kids with PIDD can sometimes grow […]

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Why is My Child Sick All Time?

Inherent in the heart of a parent is the desire to make our children feel better. But what if you can’t? What if your child spends more time at the doctor than they do at school? What if they have chicken pox three times and pneumonia more than once a year? When antibiotics become the […]

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