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If I Could Have One Wish – It Would Be Not Normal

Last night I had a dream that I found a bottle in the sand and the Genie gave me one wish. I wanted to wish for an end to Primary Immunodeficiency, but she would not let me. Anyway, I woke up before I got my wish, but I know what it would be. A combined […]

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Too Many “Ologists”

One of the biggest problems with immunodeficiency has been that it is not a single problem, at least not for us. If we only had specific antibody disease we could take our infusions and move on. But about 23% of people with PI, also have autoimmune complications. It began with the precursor to Type 1 […]

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Torn – What To Do When She is Sick

    Torn – as though equal and opposite forces were conspiring to slowly rip me apart.  Every working parent I know feels this way. You have a job and a sick child and a problem. When you have a child with Primary Immunodeficiency this is a frequent occurrence. How many days can you miss from […]

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Pills, Pills and More Pills

Pills, Pills and More Pills

For us Primary Immunodeficiency (PIDD) has not been a single diagnosis in an otherwise normal life. We seem to have lots of variables and lots of doctors. Each new complaint results in what Courtney calls “another oligist” She has a cardiologist, rheumatologist, neurologist, endocrinologist and the list goes on. Each new doctor seems to result […]

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